Spinal muscular atrophy (SMA) health equity
$2,000 guaranteed award | $6,500 maximum award
Apply nowHelp with healthcare costs for spinal muscular atrophy (health equity)
This TotalAssist fund helps you pay for out-of-pocket healthcare costs, including medication copays, coinsurance, and deductibles, health insurance premiums, and other expenses. Check your eligibility with our quick and easy tools below. If this fund is open, apply today for an instant approval decision and use your grant funding right away. Learn how TotalAssist helps you.
Health Equity Funds offer help to eligible patients living in areas identified as having increased social and financial needs, as well as higher rates of chronic conditions. Eligibility is determined in part by home address zip code.
TotalAssist also offers a spinal muscular atrophy fund. Please note that you cannot receive more than one grant for the same condition.
Eligibility criteria
To be eligible for this fund, you must:
- Have a confirmed diagnosis and are in treatment for spinal muscular atrophy, or planning to begin treatment in the next 60 days, or have been in treatment in the past 6 months. This includes active surveillance of a condition
- Have health insurance that covers your qualifying expenses
- Have an income at or less than 500% of the Federal Poverty Level, adjusted for your regional Cost of Living Index (COLI). What is this?
- Be a legal resident and receive treatment in the U.S. or a U.S. territory
- Be prescribed a medication or product listed in the approved medications, listed below
- Have a home address in a zip code served by a Health Equity Fund, which supports eligible patients living in designated social vulnerability counties
Quick eligibility checker
- Treatment
- Insurance
- Income
Approved medications
Patient Advocate Foundation covers all the prescription medications for each diagnosis, including generic or bioequivalent drugs, that meet any of the following criteria: FDA-approved, listed in official compendia, and/or listed in published evidence-based or clinical guidelines.
- CELESTONE SOLUSPAN (Betamethasone Acetate,Sod Phos)
- Cortef (Hydrocortisone)
- Deflazacort (Deflazacort)
- Depo-Medrol (Methylprednisolone Acetate)
- Dexabliss (Dexamethasone)
- Dexamethasone (Dexamethasone)
- Dexamethasone Acetate Anhydrous (Dexamethasone Acetate)
- Dexamethasone Intensol (Dexamethasone)
- Dexamethasone Sodium Phosphate (Dexamethasone Sodium Phosphate)
- Emflaza (Deflazacort)
- Evrysdi (Risdiplam)
- Hemady (Dexamethasone)
- Hexatrione (Triamcinolone Hexacetonide)
- Hydrocortisone (Hydrocortisone)
- Hydrocortisone Sod Succinate (Hydrocortisone Sodium Succinate)
- Jaythari (Deflazacort)
- Kenalog (Triamcinolone Acetonide)
- Khindivi (Hydrocortisone)
- Kymbee (Deflazacort)
- Methylprednisolone (Methylprednisolone)
- Methylprednisolone Acetate (Methylprednisolone Acetate)
- Methylprednisolone Sodium Succ (Methylprednisolone Sodium Succinate)
- Millipred Dp (Prednisolone)
- Myhibbin (Mycophenolate Mofetil)
- Pediapred (Prednisolone Sodium Phosphate)
- Prednisolone (Prednisolone)
- Prednisolone Sodium Phosphate (Prednisolone Sodium Phosphate)
- Prednisolone Sodium Phosphate Odt (Prednisolone Sodium Phosphate)
- Prednisone (Prednisone)
- Prednisone Intensol (Prednisone)
- Solu-Cortef (Hydrocortisone Sodium Succinate)
- Spinraza (Nusinersen)
- Taperdex (Dexamethasone)
- Triamcinolone Acetonide (Triamcinolone Acetonide)
- Zolgensma (Onasemnogene Abeparvovec-Xioi)
About the disease
Spinal muscular atrophy (SMA) is a group of hereditary diseases that progressively destroy motor neurons that control essential muscle activity such as speaking, walking, breathing and swallowing. It is a rare disease that affects the nervous system. Subtypes include SMA type 0, SMA type I (Werdnig-Hoffmann disease), SMA type II (Dubowitz disease), SMA type III (Kugelberg-Welander disease), and SMA type IV.
Diagnosis codes
G12.0, G12.1, G12.9
How to apply
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If your fund is open, apply online 24/7, or call 866-512-3861, Monday – Friday, 8:30am – 5:30pm ET.
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Answer pre-screening questions to confirm eligibility. Have your income, medication, diagnosis, and insurance information ready.
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Complete the application and get an instant approval decision. You can begin using your grant right away.
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How does it work?
You can use your TotalAssist grant award to help pay for out-of-pocket healthcare expenses.
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Need help applying?
Call us at 866-512-3861 to apply by phone, Monday through Friday, 8:30am - 5:30pm ET.
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Explore resources beyond TotalAssist
Patient Advocate Foundation knows that patients may need support, information, and resources beyond TotalAssist. This can include services like case management, help with living expenses, and much more. Search our National Financial Resources Directory, find community specific resources, and explore our patient education library.
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