Help with healthcare costs for Rett syndrome
This TotalAssist fund helps you pay for out-of-pocket healthcare costs, including medication copays, coinsurance, and deductibles, health insurance premiums, and other expenses. Check your eligibility with our quick and easy tools below. If this fund is open, apply today for an instant approval decision and use your grant funding right away. Learn how TotalAssist helps you.
Eligibility criteria
To be eligible for this fund, you must:
- Have a confirmed diagnosis and are in treatment for Rett syndrome, or planning to begin treatment in the next 60 days, or have been in treatment in the past 6 months. This includes active surveillance of a condition
- Have health insurance that covers your qualifying expenses
- Have an income at or less than 500% of the Federal Poverty Level, adjusted for your regional Cost of Living Index (COLI). What is this?
- Be a legal resident and receive treatment in the U.S. or a U.S. territory
- Be prescribed a medication or product listed in the approved medications, listed below
Quick eligibility checker
- Treatment
- Insurance
- Income
Approved medications
Patient Advocate Foundation covers all the prescription medications for each diagnosis, including generic or bioequivalent drugs, that meet any of the following criteria: FDA-approved, listed in official compendia, and/or listed in published evidence-based or clinical guidelines.
- Aciphex Sprinkle (Rabeprazole Sodium)
- Actonel (Risedronate Sodium)
- Alendronate Sodium (Alendronate Sodium)
- Alprazolam Intensol (Alprazolam)
- Antivert (Meclizine Hcl)
- Atelvia (Risedronate Sodium)
- Bethanechol Chloride (Bethanechol Chloride)
- Binosto (Alendronate Sodium)
- Buspirone Hcl (Buspirone Hcl)
- Carbamazepine (Carbamazepine)
- Carbamazepine Er (Carbamazepine)
- Carbatrol (Carbamazepine)
- Celebrex (Celecoxib)
- Celecoxib (Celecoxib)
- Chlordiazepoxide Hcl (Chlordiazepoxide)
- Citalopram Hbr (Citalopram Hydrobromide)
- Clonidine Hcl Er (Clonidine Hydrochloride)
- Clorazepate Dipotassium (Clorazepate Dipotassium)
- Compazine (Prochlorperazine Maleate)
- Constulose (Lactulose)
- Cymbalta (Duloxetine Hydrochloride)
- Darifenacin (Darifenacin Hydrobromide)
- Daybue (Trofinetide)
- Desvenlafaxine (Desvenlafaxine)
- Desvenlafaxine Succinate (Desvenlafaxine Succinate)
- Dexlansoprazole DR (Dexlansoprazole)
- Diazepam (Diazepam)
- Diclofenac Potassium (Diclofenac Potassium)
- Diclofenac Sodium (Diclofenac Sodium)
- Diclofenac Sodium Er (Diclofenac Sodium)
- DRISDOL (Ergocalciferol)
- Drizalma Sprinkle (Duloxetine Hydrochloride)
- Duloxetine Hcl (Duloxetine)
- Ec-Naprosyn (Naproxen)
- Effexor XR (Venlafaxine)
- Enulose (Lactulose)
- Epitol (Carbamazepine)
- Escitalopram Oxalate (Escitalopram Oxalate)
- Esomeprazole Magnesium (Esomeprazole Magnesium)
- Etodolac (Etodolac)
- Etodolac Er (Etodolac)
- Famotidine (Famotidine)
- Fenoprofen Calcium (Fenoprofen Calcium)
- Fenopron (Fenoprofen Calcium)
- Fesoterodine Fumarate Er (Fesoterodine Fumarate)
- Fetzima (Levomilnacipran Hcl)
- Fluoxetine Dr (Fluoxetine Hcl)
- Fluoxetine Hcl (Fluoxetine)
- Flurbiprofen (Flurbiprofen)
- Fluvoxamine Maleate Er (Fluvoxamine)
- Fosamax (Alendronate Sodium)
- FOSAMAX PLUS D (Alendronate Sodium/Cholecalciferol)
- Gemtesa (Vibegron)
- Generlac (Lactulose)
- Ibandronate Sodium (Ibandronate Sodium)
- Indocin (Indomethacin)
- Indomethacin (Indomethacin)
- Indomethacin Er (Indomethacin)
- Ketoprofen (Ketoprofen)
- Kristalose (Lactulose)
- Lactulose (Lactulose)
- Lamotrigine Er (Lamotrigine)
- Lamotrigine Odt (Lamotrigine)
- Lansoprazole (Lansoprazole)
- Levocarnitine Sf (Levocarnitine)
- Lexapro (Escitalopram)
- Lextol (Diclofenac/Capsicum Oleoresin)
- LODINE (Etodolac)
- Lofena (Diclofenac Potassium)
- Lorazepam Intensol (Lorazepam)
- Lurbiro (Flurbiprofen)
- Meloxicam (Meloxicam)
- Meprobamate (Meprobamate)
- Metoclopramide (Metoclopramide)
- Mirabegron (Mirabegron)
- Myrbetriq (Mirabegron)
- Nabumetone (Nabumetone)
- Nalfon (Fenoprofen Calcium)
- Nexium (Esomeprazole Magnesium)
- Nizatidine (Nizatidine)
- Omeprazole (Omeprazole)
- Orudis (Ketoprofen)
- Oxazepam (Oxazepam)
- Oxybutynin Chloride Er (Oxybutynin Chloride)
- Pantoprazole Sodium (Pantoprazole)
- Paroxetine Hcl (Paroxetine Hydrochloride)
- Pepcid (Famotidine)
- Perphenazine (Perphenazine)
- Phenergan (Promethazine)
- Prevacid (Lansoprazole)
- Prilosec (Omeprazole Magnesium)
- Pristiq (Desvenlafaxine Succinate)
- Prochlorperazine (Prochlorperazine)
- Prochlorperazine Maleate (Prochlorperazine Maleate)
- Promethegan (Promethazine)
- Protonix (Pantoprazole Sodium)
- Prozac (Fluoxetine)
- Rabeprazole Sodium (Rabeprazole)
- Raldesy (Trazodone)
- Reglan (Metoclopramide)
- Relafen (Nabumetone)
- Risedronate Sodium (Risedronate Sodium)
- Scopolamine (Scopolamine)
- Sertraline Hcl (Sertraline)
- Solifenacin Succinate (Solifenacin Succinate)
- Sulindac (Sulindac)
- Tegretol XR (Carbamazepine)
- Tolterodine Tartrate ER (Tolterodine Tartrate)
- Topiramate Er Sprinkle (Topiramate)
- Transderm Scop (Scopolamine)
- Trazodone Hcl (Trazodone)
- Trimethobenzamide Hcl (Trimethobenzamide)
- Trospium Chloride (Trospium Chloride)
- Trospium Chloride Er (Trospium Chloride)
- Valium (Diazepam)
- Valproic Acid (Valproic Acid)
- Venlafaxine Hcl Er (Venlafaxine)
- Venngel Ii (Diclofenac Sodium)
- Vesicare (Solifenacin Succinate)
- Vesicare Ls (Solifenacin Succinate)
- Vivlodex (Meloxicam)
- Vyscoxa (Celecoxib)
- Xifyrm (Meloxicam)
- Zaleplon (Zaleplon)
- Zipsor (Diclofenac Potassium)
- Zoloft (Sertraline)
- Zolpidem Tartrate Er (Zolpidem Tartrate)
- Zybic (Meloxicam)
About the disease
Rett syndrome (RS or RTT) is a rare, genetic neurological disorder that causes a loss of motor and spoken language skills, as well as other physical and neurologic impairments early in life.
Diagnosis codes
F84.2
How to apply
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If your fund is open, apply online 24/7, or call 866-512-3861, Monday – Friday, 8:30am – 5:30pm ET.
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Answer pre-screening questions to confirm eligibility. Have your income, medication, diagnosis, and insurance information ready.
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Complete the application and get an instant approval decision. You can begin using your grant right away.
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How does it work?
You can use your TotalAssist grant award to help pay for out-of-pocket healthcare expenses.
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Need help applying?
Call us at 866-512-3861 to apply by phone, Monday through Friday, 8:30am - 5:30pm ET.
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