Help with healthcare costs for Pompe disease (health equity)
This TotalAssist fund helps you pay for out-of-pocket healthcare costs, including medication copays, coinsurance, and deductibles, health insurance premiums, and other expenses. Check your eligibility with our quick and easy tools below. If this fund is open, apply today for an instant approval decision and use your grant funding right away. Learn how TotalAssist helps you.
Health Equity Funds offer help to eligible patients living in areas identified as having increased social and financial needs, as well as higher rates of chronic conditions. Eligibility is determined in part by home address zip code.
TotalAssist also offers a Pompe disease fund. Please note that you cannot receive more than one grant for the same condition.
Eligibility criteria
To be eligible for this fund, you must:
- Have a confirmed diagnosis and are in treatment for Pompe disease, or planning to begin treatment in the next 60 days, or have been in treatment in the past 6 months. This includes active surveillance of a condition
- Have health insurance that covers your qualifying expenses
- Have an income at or less than 500% of the Federal Poverty Level, adjusted for your regional Cost of Living Index (COLI). What is this?
- Be a legal resident and receive treatment in the U.S. or a U.S. territory
- Be prescribed a medication or product listed in the approved medications, listed below
- Have a home address in a zip code served by a Health Equity Fund, which supports eligible patients living in designated social vulnerability counties
Quick eligibility checker
- Treatment
- Insurance
- Income
Approved medications
Patient Advocate Foundation covers all the prescription medications for each diagnosis, including generic or bioequivalent drugs, that meet any of the following criteria: FDA-approved, listed in official compendia, and/or listed in published evidence-based or clinical guidelines.
- Lumizyme (Alglucosidase Alfa)
- Nexviazyme (Avalglucosidase Alfa-Ngpt)
- Opfolda (Miglustat)
- Pombiliti (Cipaglucosidase Alfa-Atga)
About the disease
Pompe disease, also known as glycogen storage disease type II, acid maltase deficiency disease and acid maltase deficiency disease, is a genetic disorder in which glycogen builds up in organs and tissues, especially in muscles, causing them to break down. It is a rare disease that affects multiple body systems. Subtypes include classic form of infantile-onset Pompe disease, non-classic form of infantile-onset Pompe disease and late- onset type of Pompe disease.
Diagnosis codes
E74.02
How to apply
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If your fund is open, apply online 24/7, or call 866-512-3861, Monday – Friday, 8:30am – 5:30pm ET.
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Answer pre-screening questions to confirm eligibility. Have your income, medication, diagnosis, and insurance information ready.
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Complete the application and get an instant approval decision. You can begin using your grant right away.
Application guides
Questions?
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How does it work?
You can use your TotalAssist grant award to help pay for out-of-pocket healthcare expenses.
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Need help applying?
Call us at 866-512-3861 to apply by phone, Monday through Friday, 8:30am - 5:30pm ET.
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Explore resources beyond TotalAssist
Patient Advocate Foundation knows that patients may need support, information, and resources beyond TotalAssist. This can include services like case management, help with living expenses, and much more. Search our National Financial Resources Directory, find community specific resources, and explore our patient education library.
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