Paroxysmal nocturnal hemoglobinuria (PNH)
$6,900 guaranteed award | $9,500 maximum award
Apply nowHelp with healthcare costs for paroxysmal nocturnal hemoglobinuria
This TotalAssist fund helps you pay for out-of-pocket healthcare costs, including medication copays, coinsurance, and deductibles, health insurance premiums, and other expenses. Check your eligibility with our quick and easy tools below. If this fund is open, apply today for an instant approval decision and use your grant funding right away. Learn how TotalAssist helps you.
Eligibility criteria
To be eligible for this fund, you must:
- Have a confirmed diagnosis and are in treatment for paroxysmal nocturnal hemoglobulinuria, or planning to begin treatment in the next 60 days, or have been in treatment in the past 6 months. This includes active surveillance of a condition
- Have health insurance that covers your qualifying expenses
- Have an income at or less than 500% of the Federal Poverty Level, adjusted for your regional Cost of Living Index (COLI). What is this?
- Be a legal resident and receive treatment in the U.S. or a U.S. territory
- Be prescribed a medication or product listed in the approved medications, listed below
Quick eligibility checker
- Treatment
- Insurance
- Income
Approved medications
Patient Advocate Foundation covers all the prescription medications for each diagnosis, including generic or bioequivalent drugs, that meet any of the following criteria: FDA-approved, listed in official compendia, and/or listed in published evidence-based or clinical guidelines.
- Bkemv (Eculizumab-Aeeb)
- Empaveli (Pegcetacoplan)
- Epysqli (Eculizumab-Aagh)
- Fabhalta (Iptacopan)
- Piasky (Crovalimab-Akkz)
- Soliris (Eculizumab)
- Ultomiris (Ravulizumab-Cwvz)
- Voydeya (Danicopan)
About the disease
Paroxysmal Nocturnal Hemoglobinuria (PNH), also known as Marchiafava– Micheli syndrome, is a rare disease that is characterized by impaired bone marrow function and destruction of red blood cells. PNH is a rare disease that affects the circulatory system.
Diagnosis codes
D59.5
How to apply
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If your fund is open, apply online 24/7, or call 866-512-3861, Monday – Friday, 8:30am – 5:30pm ET.
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Answer pre-screening questions to confirm eligibility. Have your income, medication, diagnosis, and insurance information ready.
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Complete the application and get an instant approval decision. You can begin using your grant right away.
Application guides
Questions?
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How does it work?
You can use your TotalAssist grant award to help pay for out-of-pocket healthcare expenses.
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Need help applying?
Call us at 866-512-3861 to apply by phone, Monday through Friday, 8:30am - 5:30pm ET.
Contact usRelated organizations
Connect with other organizations and resources for support.
Featured partner:
Aplastic Anemia & MDS International Foundation (AAMDSIF) is dedicated to providing support, education, community, and research for patients and families impacted by aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases.
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