Lysosomal acid lipase deficiency (LAL-D)
$2,000 guaranteed award | $9,500 maximum award
Apply nowHelp with healthcare costs for lysosomal acid lipase deficiency
This TotalAssist fund helps you pay for out-of-pocket healthcare costs, including medication copays, coinsurance, and deductibles, health insurance premiums, and other expenses. Check your eligibility with our quick and easy tools below. If this fund is open, apply today for an instant approval decision and use your grant funding right away. Learn how TotalAssist helps you.
Eligibility criteria
To be eligible for this fund, you must:
- Have a confirmed diagnosis and are in treatment for LAL-D, or planning to begin treatment in the next 60 days, or have been in treatment in the past 6 months. This includes active surveillance of a condition
- Have health insurance that covers your qualifying expenses
- Have an income at or less than 500% of the Federal Poverty Level, adjusted for your regional Cost of Living Index (COLI). What is this?
- Be a legal resident and receive treatment in the U.S. or a U.S. territory
- Be prescribed a medication or product listed in the approved medications, listed below
Quick eligibility checker
- Treatment
- Insurance
- Income
Approved medications
Patient Advocate Foundation covers all the prescription medications for each diagnosis, including generic or bioequivalent drugs, that meet any of the following criteria: FDA-approved, listed in official compendia, and/or listed in published evidence-based or clinical guidelines.
- Antivert (Meclizine)
- Atorvaliq (Atorvastatin Calcium)
- Atorvastatin Calcium (Atorvastatin Calcium)
- Atropine Sulfate (Atropine Sulfate)
- Bonjesta (Doxylamine Succinate/Pyridoxine)
- Cholestyramine (Cholestyramine)
- Cholestyramine Light (Cholestyramine)
- Compazine (Prochlorperazine Maleate)
- Constulose (Lactulose)
- Diclegis (Doxylamine Succinate/Pyridoxine Hydrochloride)
- Enulose (Lactulose)
- Ezallor Sprinkle (Rosuvastatin Calcium)
- Ezetimibe (Ezetimibe)
- Fluvastatin ER (Fluvastatin Sodium)
- Fluvastatin Sodium (Fluvastatin Sodium)
- Generlac (Lactulose)
- Kanuma (Sebelipase Alfa)
- Kristalose (Lactulose)
- Lactulose (Lactulose)
- Lipitor (Atorvastatin Calcium)
- Livalo (Pitavastatin)
- LOMOTIL (Diphenoxylate / Atropine)
- Lomotil (Diphenoxylate / Atropine)
- Lovastatin (Lovastatin)
- Metoclopramide (Metoclopramide)
- Motofen (Difenoxin Hydrochloride/Atropine Sulfate)
- Opium Tincture Deodorized (Opium)
- Perphenazine (Perphenazine)
- Phenergan (Promethazine)
- Pitavastatin (Pitavastatin)
- Pravastatin Sodium (Pravastatin)
- Prochlorperazine (Prochlorperazine)
- Prochlorperazine Maleate (Prochlorperazine)
- Promethegan (Promethazine Hydrochloride)
- Questran Light (Cholestyramine)
- Reglan (Metoclopramide Hydrochloride)
- Rosuvastatin Calcium (Rosuvastatin Calcium)
- Simvastatin (Simvastatin)
- Transderm-Scop (Scopolamine)
- Trimethobenzamide Hcl (Trimethobenzamide)
- Vytorin (Ezetimibe/Simvastatin)
- Zetia (Ezetimibe)
- Zocor (Simvastatin)
- Zypitamag (Pitavastatin)
About the disease
Lysosomal acid lipase deficiency (LAL-D), also known as Wolman disease or cholesterol ester storage disease (CESD), is an inherited genetic condition in which the body does not produce enough lysosomal acid lipase enzyme to process fats and cholesterol. The resulting high levels of cholesterol and fats cause damage to blood vessels and organs.
Diagnosis codes
E75.5
How to apply
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If your fund is open, apply online 24/7, or call 866-512-3861, Monday – Friday, 8:30am – 5:30pm ET.
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Answer pre-screening questions to confirm eligibility. Have your income, medication, diagnosis, and insurance information ready.
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Complete the application and get an instant approval decision. You can begin using your grant right away.
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How does it work?
You can use your TotalAssist grant award to help pay for out-of-pocket healthcare expenses.
Learn more
Need help applying?
Call us at 866-512-3861 to apply by phone, Monday through Friday, 8:30am - 5:30pm ET.
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The American Liver Foundation supports individuals affected by liver disease through education, resources, support services, and advocacy. They offer disease-specific and caregiver supports groups, including facilitated virtual sessions, moderated online communities, peer mentoring, and educational webinars, videos and materials. The organization also advances research focused on the prevention, treatment, and cure of liver disease.
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